The Stanley Project: Remembering how to love @ The ITASA West Coast Conference

A couple weeks ago on April 5th, I had the honor to give a workshop about The Stanley Project at the ITASA West Coast Conference at UCLA. It was such an inspiring experience. Truly blessed to be able to share my story to the beautiful peoples that attended the workshop.

This was actually the first time I have ever given a workshop about The Stanley Project. It was extremely nerve-wrecking preparing for it. I did not want to disappoint the people that were coming, and I really wanted to paint a clear picture of the intent of The Stanley Project. I watched a bunch of TED talks and brain-stormed numerous ideas with friends to see how I could simplify what I wanted to say. I had so much to share, unfortunately I could only share so much in an hour.

The workshop’s theme was Remembering how to Love. I wanted to inspire and motivate each and everyone of the attendees to find their intent of love. Understand the importance of love in all aspects of their lives, and to be able to re-embrace it. The workshop essentially was given in the format of my life story, from the origins of how everything started, to how I came to be. This was also the first time I talked about Sammy (My eldest brother) in the public to so many people. Sammy really inspired and triggered my initial urge to help people whenever I can, and ultimately Stanley transformed that urge into an uplifting movement. It wasn’t easy talking about Sammy and Stanley again especially in the public. I am sure people have noticed that I got a bit emotional during the workshop when I started talking about my memories with Sammy and Stanley…

At the end of the workshop we all did a group activity defining what LOVE means to us personally, and several people volunteered to express their feelings to the people they love infront of the camera. I really appreciate everyone’s participation during the workshop, it means a lot to me. It felt amazing exchanging thoughts with everyone, and sharing the positive energy in the room. It was also very touching to see my friends’ presence. You were all there since the beginning and are still there for me, I really appreciate everything you all have done so far.

The Stanley Project isn’t just about Stanley, it’s about everyone of you. The idea that everyone is capable of so much love, and that love transcends everything. Once we realize that, and we start expressing it and sharing it with the beautiful peoples around us: the world will be a much better place. Thank you for coming everyone, and thank you for inspiring me.

If you missed out on the workshop a recap video will be up soon!

cancer can’t, love can.
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Deepest gratitude to ITASA for brining me out, to Vanna, Ginny, Nick and the rest of the ITASA staff!
To all the new friends that I made during the workshop and throughout the day, thank you for coming and for being such awesome peoples. Winnie, Judy, Stanley, Coco…and many more that I cannot recall off the top of my head!

Please email me at chris@thestanleyproject.org if you have any questions or would like me to give the workshop somewhere!

Please like the facebook page of The Stanley Project to stay tuned for more updates!

And if you would like to know more about Sammy click here

standing on top of the stairs with my handmade sign!

standing on top of the stairs with my handmade sign!

beautiful peoples

beautiful peoples

lovely contributions and my hand made sign

lovely contributions and my hand made sign

What is left un·said

“Regret” – is a common emotion that we are all too familiar with…When we lose someone we love deeply, our feeling of regret amplifies and we start looking for traces of our loved ones in our memories. Our concept of time is completely suspended. We stop focusing on the present, and we start dwelling in the past. I can still remember that morning when Stanley took his last breath in front of me on Nov. 14. 2011, I was dumbstruck with numerous emotions that I could not even begin to comprehend. Everything was meshed together, and before I could even realize it, tears were running down my face. The days following his death, my family and I immersed ourselves in the past, thinking about all the moments we shared with Stanley. We filled ourselves with sorrow, remorse and regret, thinking about our interactions with Stanley and what could have been done differently. Since then, I would constantly find myself back in the past again, reminiscing about him.

As I have mentioned before, me and Stanley’s relationship was unique. We were very close, yet we rarely exchange or express our gratitude towards each other. We knew we loved each other very much, but until his cancer, never once did we actually say “I love you” to each other. Perhaps it was the culture of being raised as a Taiwanese. Growing up, we were not taught to express our love directly, it was merely a silent mutual acknowledgement that love “exists” between us and nothing more.

I can still remember vividly when Stanley called me and told me that they had found a tumor in him. We were both trying to remain calm for each other on the phone, but you could hear our voices trembling as we held our breaths, trying so hard not to cry. Stanley and I realized the severity of his cancer, and how his time was literally counting down. It was then that things completely changed between us. Gradually, we opened up to each other, and the emotional barrier we had started to disappear. We constantly expressed how much we love each other, and we never let a chance slip by where we could tell each other “I love you.” We started conversing a lot. We talked about our personal life, the type of girls we like, what kind of girls we dated/we should date, and what I plan to do with my life. He became extremely interested in my life, and started caring about every single thing I did. He would criticize my performances with Instant Noodles, he urged me to keep dancing, and he demanded to meet all my close friends. On the days when his spirits were high, I would bring my friends to visit him. I became involved with his friends, with his personal life, and we would often talk about very intimate things. Death brought Stanley and I extremely close together. We were able to talk about dying, what I should do when he is gone, and what I should be prepared for. I was helping him write his will, and his last words to his friends. I was the only one in the family he was willing to talk about death with and we would often joke about death.

As we undergo loss of our loved ones, we try to revive them through our memories. We remind ourselves of the time we spent together, and the conversations we had. Looking back, there was nothing left un-said between me and Stanley. We expressed ourselves honestly, and said everything we needed to say to each other before his beautiful soul departed this world. Although I still feel regrets for not being able to save him, I do not feel regret about not expressing my love truthfully to him. I knew he left this world knowing that I loved him very very much.

PLEASE Do not let any opportunity slip by where you could express your love to your loved ones. Take some time, text your loved ones, call them, talk to them and just simply express your love, your care, and your worry to them. It is never too late and there is always something more to say. You never want to look back in your memories only to realize that the things you could remember about your loved ones are the things left un·said.

Cancer Can’t, Love Can.
-3

Reminisce over you

Sammy and Stanley

Sammy(on the left) and Stanley(on the right)


Happy birthday to my beloved eldest brother, Sammy Kuo, born in March-11-1984. A lot of you do not know, but Sammy is my eldest brother who was afflicted with a complicated case of measles infection which ultimately took his life on October of 2006 when he was only 22 years old. Growing up, I rarely talk about Sammy to anyone, only a select close-knit group of friends knew about him. The disease that Sammy was diagnosed with is called SSPE (Subacute sclerosing panencephalitis), he fell ill when I was 7 years old. My family really focused on caring for him and we all found our own way of coping with what happened to him. Losing Sammy in 2006 was extremely devastating, I felt the weight of the world crushing down on my shoulders, I was unable to comprehend his death and what it all really meant.

One of the ways of holding on to our loved ones is through our memories. I remember vividly after Sammy got sick, every year on his birthday, Stanley and I would play “Happy Birthday” on our violins and serenade to him. At that point his condition already deteriorated into a vegetative state, but we could see that he was very happy and he was smiling through his eyes. Growing up, Sammy was only able to take care of me as a big brother briefly before he fell ill. Yet, from what I can remember, he was compassionate, artistic, kind and exceptionally smart. He would always keep me out of trouble and mediate fights between me and Stanley. Sammy had such an optimistic attitude towards life that I later adapted, and he would always put everyone first before himself. He taught me a lot in life, inspired me to be who I am today, and he is one of the main motivations behind my pursuit of a career in medicine.

Each year on Sammy’s birthday, my cousin Amy would post a hand-written letter by Sammy to her and reflect on the beautiful memories it brings. This year, I have the honor of posting a letter for her! Attached is a photo of a letter written by Sammy in 1995 when he was 11 years old. Her favorite part is this:

“The best ride was the boat ride, every body gets wet because there are big rapids and people can pay 20 NT to fire cannon balls in the water and make big splashes at you. Now, let me tell you about my report card. I’ll put it very simple: I got all A’s on everything except writing and oral skills.”

reminisce over you

reminisce over you


Happy birthday Sammy. We all love you and miss you very much…I hope you and Stanley are not causing havoc up above.

Love life,
3

If anyone wants to learn more about Sammy please check out the Sammy Kuo memorial fund that donates to promising neuroscience research.

Until the darkness comes

After Stanley passed away, I moved into his room. There are still a lot of memories & feelings lingering in this room. I have not fully moved on, and I do not think I am ready to let any of it go yet. It is probably why I intentionally kept most of the things that used to be in his room in “my” room. I guess part of me wishes that by moving in with most of the room in its original state, I would still be able to feel his presence. Sometimes I do feel that he is here with me. Being in this room allows me to mellow down and process through a lot of my memories with Stanley. I remember how since the diagnosis of his cancer, every night, Stanley would sleep with all the lights on in his room. There would be times where I would sleep in his room keeping him company, and the lights would keep me up. It was definitely frustrating at first, because I felt that he would never fully get well-rested since the lights would keep him up and I was having a hard time falling asleep as well. Getting good sleep was crucial to his recovery, and I did not want it to affect his health. I never really understood why he kept all the lights on until one day, he told me that he’s afraid. He’s afraid not of the dark, but of death. He was afraid that he might turn off the lights, and never be able to see it again. Since his cancer, “darkness” had a whole new meaning associated with it. It was not just the absence of light, but the absence of life and the absence of hope. He was genuinely scared that he might fall asleep and never wake up again. Looking back, I do not think Stanley really slept much throughout the time he had his cancer. He would doze off for a good hour or so, and would wake up and continue to use his laptop, or play his PS3. Time was literally counting down for him and he was trying to utilize every millisecond of it.

What many people neglect is how lonely it gets for cancer patients. It is not an easy task dealing with cancer, let alone the idea of death. The loneliness they experience is far beyond our understanding. It takes a lot of hard work and compassion to really help them open up and pull them out of the darkness. At times, you may feel like you have reached them, but you may have only touched on the surface of the many layers that you have to peel through, so do not give up trying. Stanley especially was not a very expressive person. He would only open up to certain friends/family members. Most of the time it was more of a silent acknowledgement between me and him that we understood each other. Sometimes your loved ones might do things out of the ordinary but they must have their reasons of doing so. Be understanding towards their actions, be even more understanding towards their situation, and be there for them. Everything changes completely after their diagnosis of cancer. Every word, past experience and memory will all have a different meaning attached to it. I certainly could have been more understanding towards Stanley. It was not easy being his caregiver and his brother at the same time. I wanted him to stay healthy, but at the same time I understood why he did what he did. I think this does not just apply to people dealing with loved ones that have cancer. This should apply to everyone. Take a moment and think on your loved ones position, and be understanding of where they are coming from, and what they are trying to say or do. Take a moment and just tell them that you love them, and you are there for them unconditionally.

cancer can’t, love can.

-3

Dream new dreams.

Finally after endless revamping and going back and forth with ideas…I humbly present to ya’ll the finalized blog/creative space for the Stanley Project. This website is a collective effort of some very talented individuals. I am eternally grateful to have these creative & supportive individuals as my close family and friends, thank you for believing in me and the idea behind the Stanley Project. SO, a little about this amazing space…This space will be primarily used to talk about my personal experiences with love & loss, how I coped with losing my brothers that I have loved so deeply, and how it has affected my life. However, the original intention is still there, I would still love for ya’ll to share your story with me (by email or leave a comment). I want to make a personal connection with each and every one of you. You are not alone.

Here’s to the individuals that made it possible. Brad Low, thank you for such an amazing web design and the amount of work you put in. Arthur Lien, thank you, my ridiculous friend/family for designing such a dope Stanley Project logo. Tom Tsai, for being there physically and spiritually as a friend/family and being part of the creative process for the logo. Rob Tsai, our talks and impersonations. To the unnamed individuals and to those that believed in me and continue to do so…cheers!

Cancer Can’t, Love Can.

Chris

Nobody can go back and start a new beginning, but anyone can start today and make a new ending. -Maria Robinson