What is on your list?

Before Stanley’s condition started to go downhill, he compiled a bucket list with me about all the things he wanted to do before he died. Unfortunately, his cancer progressed faster than we expected, and within months he lost his mobility thereby restricting him from doing a lot of the items on his list. We were not able to complete all the items on his list but we were able to check off one of the most important ones, which is…going to Japan!

Stanley loved Japan. He loved the culture, the art, the gaming industry, the people, and just everything about Japan. In high school, he took a Japanese class just so that he could fully understand the Nintendo/Sega games he was playing (while most of us would just press buttons until the game somehow started). Other than a couple of trips we took to Japan when we were kids, Stanley never had the chance to go back ever since.

When we decided to go to Japan, Stanley had already developed minor depression, loss of appetite, and he was not himself. He lost majority of his mobility since the cancer ate away his bone. He was not able to walk by himself anymore. He started needing the assistance of a walking cane, and eventually he needed a wheel chair to get around. Stanley resented that. We were still able to fly him to Japan, and we took about a week in Japan doing everything he has ever dreamed of doing. We took sticky pics, we went to toy stores hunting down Dragonball-Z toys, and we went to eat all his favorite Japanese eateries like sushi, ramen, and MOS burger. Despite all the trouble getting Stanley to Japan, those seven days were one of the happiest times I have ever seen Stanley had. Also, just being in Japan with him, relaxing with him in Japan for a week was one of the happiest times our whole family has ever had as well. Those seven days were deeply engraved in my memory. In addition, Japan really brought back Stanley’s spirits and hope. The trip reset his mood and he was able to go back to the states ready for another round of treatment. I still remember how he was completely transformed after being in Japan. He was willing to stand for 2-3 minutes just to eat sushi (at that point Stanley could barely stand), and he wanted to actively go to all these places to explore. It was such an amazing time. I cannot help but wonder…what if we did this earlier, way before Stanley was diagnosed with cancer. What if we made the effort to spend time together as a family and paid more attention to each other instead of our jobs, academics etc. We probably would not have had that much regret about Stanley’s incomplete list, and we would have spent a lot more quality time with Stanley as a family…

Even though we were not able to complete his bucket list, we tried our best doing most of the things on his list that his body could physically handle, given the circumstances. When Stanley passed away, I knew that he felt regret for all the unfinished things that were left on his list, and I felt partly responsible for the incomplete list. It was disheartening to see that he was not able to complete it, so I decided that I owe it to him to complete his list. I also realized that I have a bucket list too, but I just never thought much of it, or to execute it. One of the things Stanley told me before he passed away was to take action and do what I wanted to do. “Never wait” he says. So after his death, I set off my journey to complete both me and Stanley’s bucket lists. I started off first by going to Africa to volunteer since I have dreamt of doing so since I was a kid. During my time there I took the initiative to do another item off Stanley’s list – bungee jumping.

For those of you that know me, you know that I suffer from severe vertigo. I am frightened to death to ride roller coasters and I do not like being too high up. I get dizzy, drowsy and my legs weaken when I am too far off the ground. However, when I went to Africa, I decided to use my week off to go to Uganda and bungee jump into the Nile river for Stanley. It was probably a stupid decision, but it was very liberating. It was something that I wanted to do for him, and I promised I would jump with him when we were writing his list together. The jump probably lasted no more than 2 seconds but it was the longest 2 seconds of my life. The bungee jump can be seen here. You could tell that I was freaking out, screaming, yelling, and trying to get it over with. I am not sure if I would ever bungee jump again, but it felt great breaking through my comfort zone. I felt the presence of Stanley with me as I jumped, and he was probably laughing at me as he usually does for doing something ridiculous like this. In addition to bungee jumping, I also rafted the Nile just to check it off on my bucket list!

So why talk about bucket lists? It all goes back to love, family, and regret. If you have dreams, things you would like to do, places to travel, go forth and accomplish them now. Write it down, and make a point of executing it. Do not wait or think that you would have time in the future. Life is unpredictable and you never know what will happen. Prepare for the future but do not forget about the present, and what you have in front of you, especially your family. And yes, I am currently still in the progress of checking things off of both me and Stanley’s bucket lists. One thing that I do regret is not being able to accompany Stanley to do the things on his list, and have him complete my list with me. It is sad knowing that some of the items on his list were meant to be done with me, ultimately he ran out of time to do it with me and completing his list has become one of the items on my bucket list. I experienced it first hand that you don’t have all the time in the world, so make the effort to spend time with your family and complete your list. Don’t be scared to take risks and do what your heart desires. Travel somewhere, explore, and just live! Do it while you can, especially with the people you love. So what is on your list?

The Stanley Project: Remembering how to love @ The ITASA West Coast Conference

A couple weeks ago on April 5th, I had the honor to give a workshop about The Stanley Project at the ITASA West Coast Conference at UCLA. It was such an inspiring experience. Truly blessed to be able to share my story to the beautiful peoples that attended the workshop.

This was actually the first time I have ever given a workshop about The Stanley Project. It was extremely nerve-wrecking preparing for it. I did not want to disappoint the people that were coming, and I really wanted to paint a clear picture of the intent of The Stanley Project. I watched a bunch of TED talks and brain-stormed numerous ideas with friends to see how I could simplify what I wanted to say. I had so much to share, unfortunately I could only share so much in an hour.

The workshop’s theme was Remembering how to Love. I wanted to inspire and motivate each and everyone of the attendees to find their intent of love. Understand the importance of love in all aspects of their lives, and to be able to re-embrace it. The workshop essentially was given in the format of my life story, from the origins of how everything started, to how I came to be. This was also the first time I talked about Sammy (My eldest brother) in the public to so many people. Sammy really inspired and triggered my initial urge to help people whenever I can, and ultimately Stanley transformed that urge into an uplifting movement. It wasn’t easy talking about Sammy and Stanley again especially in the public. I am sure people have noticed that I got a bit emotional during the workshop when I started talking about my memories with Sammy and Stanley…

At the end of the workshop we all did a group activity defining what LOVE means to us personally, and several people volunteered to express their feelings to the people they love infront of the camera. I really appreciate everyone’s participation during the workshop, it means a lot to me. It felt amazing exchanging thoughts with everyone, and sharing the positive energy in the room. It was also very touching to see my friends’ presence. You were all there since the beginning and are still there for me, I really appreciate everything you all have done so far.

The Stanley Project isn’t just about Stanley, it’s about everyone of you. The idea that everyone is capable of so much love, and that love transcends everything. Once we realize that, and we start expressing it and sharing it with the beautiful peoples around us: the world will be a much better place. Thank you for coming everyone, and thank you for inspiring me.

If you missed out on the workshop a recap video will be up soon!

cancer can’t, love can.
———————————————————————————————————-
Deepest gratitude to ITASA for brining me out, to Vanna, Ginny, Nick and the rest of the ITASA staff!
To all the new friends that I made during the workshop and throughout the day, thank you for coming and for being such awesome peoples. Winnie, Judy, Stanley, Coco…and many more that I cannot recall off the top of my head!

Please email me at chris@thestanleyproject.org if you have any questions or would like me to give the workshop somewhere!

Please like the facebook page of The Stanley Project to stay tuned for more updates!

And if you would like to know more about Sammy click here

standing on top of the stairs with my handmade sign!

standing on top of the stairs with my handmade sign!

beautiful peoples

beautiful peoples

lovely contributions and my hand made sign

lovely contributions and my hand made sign

What is left un·said

“Regret” – is a common emotion that we are all too familiar with…When we lose someone we love deeply, our feeling of regret amplifies and we start looking for traces of our loved ones in our memories. Our concept of time is completely suspended. We stop focusing on the present, and we start dwelling in the past. I can still remember that morning when Stanley took his last breath in front of me on Nov. 14. 2011, I was dumbstruck with numerous emotions that I could not even begin to comprehend. Everything was meshed together, and before I could even realize it, tears were running down my face. The days following his death, my family and I immersed ourselves in the past, thinking about all the moments we shared with Stanley. We filled ourselves with sorrow, remorse and regret, thinking about our interactions with Stanley and what could have been done differently. Since then, I would constantly find myself back in the past again, reminiscing about him.

As I have mentioned before, me and Stanley’s relationship was unique. We were very close, yet we rarely exchange or express our gratitude towards each other. We knew we loved each other very much, but until his cancer, never once did we actually say “I love you” to each other. Perhaps it was the culture of being raised as a Taiwanese. Growing up, we were not taught to express our love directly, it was merely a silent mutual acknowledgement that love “exists” between us and nothing more.

I can still remember vividly when Stanley called me and told me that they had found a tumor in him. We were both trying to remain calm for each other on the phone, but you could hear our voices trembling as we held our breaths, trying so hard not to cry. Stanley and I realized the severity of his cancer, and how his time was literally counting down. It was then that things completely changed between us. Gradually, we opened up to each other, and the emotional barrier we had started to disappear. We constantly expressed how much we love each other, and we never let a chance slip by where we could tell each other “I love you.” We started conversing a lot. We talked about our personal life, the type of girls we like, what kind of girls we dated/we should date, and what I plan to do with my life. He became extremely interested in my life, and started caring about every single thing I did. He would criticize my performances with Instant Noodles, he urged me to keep dancing, and he demanded to meet all my close friends. On the days when his spirits were high, I would bring my friends to visit him. I became involved with his friends, with his personal life, and we would often talk about very intimate things. Death brought Stanley and I extremely close together. We were able to talk about dying, what I should do when he is gone, and what I should be prepared for. I was helping him write his will, and his last words to his friends. I was the only one in the family he was willing to talk about death with and we would often joke about death.

As we undergo loss of our loved ones, we try to revive them through our memories. We remind ourselves of the time we spent together, and the conversations we had. Looking back, there was nothing left un-said between me and Stanley. We expressed ourselves honestly, and said everything we needed to say to each other before his beautiful soul departed this world. Although I still feel regrets for not being able to save him, I do not feel regret about not expressing my love truthfully to him. I knew he left this world knowing that I loved him very very much.

PLEASE Do not let any opportunity slip by where you could express your love to your loved ones. Take some time, text your loved ones, call them, talk to them and just simply express your love, your care, and your worry to them. It is never too late and there is always something more to say. You never want to look back in your memories only to realize that the things you could remember about your loved ones are the things left un·said.

Cancer Can’t, Love Can.
-3

Reminisce over you

Sammy and Stanley

Sammy(on the left) and Stanley(on the right)


Happy birthday to my beloved eldest brother, Sammy Kuo, born in March-11-1984. A lot of you do not know, but Sammy is my eldest brother who was afflicted with a complicated case of measles infection which ultimately took his life on October of 2006 when he was only 22 years old. Growing up, I rarely talk about Sammy to anyone, only a select close-knit group of friends knew about him. The disease that Sammy was diagnosed with is called SSPE (Subacute sclerosing panencephalitis), he fell ill when I was 7 years old. My family really focused on caring for him and we all found our own way of coping with what happened to him. Losing Sammy in 2006 was extremely devastating, I felt the weight of the world crushing down on my shoulders, I was unable to comprehend his death and what it all really meant.

One of the ways of holding on to our loved ones is through our memories. I remember vividly after Sammy got sick, every year on his birthday, Stanley and I would play “Happy Birthday” on our violins and serenade to him. At that point his condition already deteriorated into a vegetative state, but we could see that he was very happy and he was smiling through his eyes. Growing up, Sammy was only able to take care of me as a big brother briefly before he fell ill. Yet, from what I can remember, he was compassionate, artistic, kind and exceptionally smart. He would always keep me out of trouble and mediate fights between me and Stanley. Sammy had such an optimistic attitude towards life that I later adapted, and he would always put everyone first before himself. He taught me a lot in life, inspired me to be who I am today, and he is one of the main motivations behind my pursuit of a career in medicine.

Each year on Sammy’s birthday, my cousin Amy would post a hand-written letter by Sammy to her and reflect on the beautiful memories it brings. This year, I have the honor of posting a letter for her! Attached is a photo of a letter written by Sammy in 1995 when he was 11 years old. Her favorite part is this:

“The best ride was the boat ride, every body gets wet because there are big rapids and people can pay 20 NT to fire cannon balls in the water and make big splashes at you. Now, let me tell you about my report card. I’ll put it very simple: I got all A’s on everything except writing and oral skills.”

reminisce over you

reminisce over you


Happy birthday Sammy. We all love you and miss you very much…I hope you and Stanley are not causing havoc up above.

Love life,
3

If anyone wants to learn more about Sammy please check out the Sammy Kuo memorial fund that donates to promising neuroscience research.

Until the darkness comes

After Stanley passed away, I moved into his room. There are still a lot of memories & feelings lingering in this room. I have not fully moved on, and I do not think I am ready to let any of it go yet. It is probably why I intentionally kept most of the things that used to be in his room in “my” room. I guess part of me wishes that by moving in with most of the room in its original state, I would still be able to feel his presence. Sometimes I do feel that he is here with me. Being in this room allows me to mellow down and process through a lot of my memories with Stanley. I remember how since the diagnosis of his cancer, every night, Stanley would sleep with all the lights on in his room. There would be times where I would sleep in his room keeping him company, and the lights would keep me up. It was definitely frustrating at first, because I felt that he would never fully get well-rested since the lights would keep him up and I was having a hard time falling asleep as well. Getting good sleep was crucial to his recovery, and I did not want it to affect his health. I never really understood why he kept all the lights on until one day, he told me that he’s afraid. He’s afraid not of the dark, but of death. He was afraid that he might turn off the lights, and never be able to see it again. Since his cancer, “darkness” had a whole new meaning associated with it. It was not just the absence of light, but the absence of life and the absence of hope. He was genuinely scared that he might fall asleep and never wake up again. Looking back, I do not think Stanley really slept much throughout the time he had his cancer. He would doze off for a good hour or so, and would wake up and continue to use his laptop, or play his PS3. Time was literally counting down for him and he was trying to utilize every millisecond of it.

What many people neglect is how lonely it gets for cancer patients. It is not an easy task dealing with cancer, let alone the idea of death. The loneliness they experience is far beyond our understanding. It takes a lot of hard work and compassion to really help them open up and pull them out of the darkness. At times, you may feel like you have reached them, but you may have only touched on the surface of the many layers that you have to peel through, so do not give up trying. Stanley especially was not a very expressive person. He would only open up to certain friends/family members. Most of the time it was more of a silent acknowledgement between me and him that we understood each other. Sometimes your loved ones might do things out of the ordinary but they must have their reasons of doing so. Be understanding towards their actions, be even more understanding towards their situation, and be there for them. Everything changes completely after their diagnosis of cancer. Every word, past experience and memory will all have a different meaning attached to it. I certainly could have been more understanding towards Stanley. It was not easy being his caregiver and his brother at the same time. I wanted him to stay healthy, but at the same time I understood why he did what he did. I think this does not just apply to people dealing with loved ones that have cancer. This should apply to everyone. Take a moment and think on your loved ones position, and be understanding of where they are coming from, and what they are trying to say or do. Take a moment and just tell them that you love them, and you are there for them unconditionally.

cancer can’t, love can.

-3